Disability Data Advocacy Workshop for Organisations of Persons with Disabilities - Session Materials

"Persons with disabilities are one of the most marginalised and excluded groups in society and face countless barriers across the globe."



This set of materials has been produced to support virtual, introductory workshops about the value, collection, and use of disability data. The workshops are designed to support persons with disabilities and members of their representative organisations to build skills and knowledge on disability data advocacy, which they can apply within their local context. The materials were developed by CBM Global's Inclusion Advisory Group in partnership with the United Nations Population Fund (UNFPA) Asia Pacific, the Stakeholder Group of Persons with Disabilities for Sustainable Development, the International Disability Alliance, and various regional and national organisations of persons with disabilities (OPDs), including the Pacific Disability Forum, a partnership that seeks to build resources, awareness, and capacity on disability data with key stakeholders.



As explained in the Introduction, "The lack of data on persons with disabilities exacerbates inequalities and marginalisation. Data is key to identifying the gaps and challenges experienced by persons with disabilities and to creating and amending existing policies, programmes, and investments to be inclusive of and targeting the needs and priorities of persons with disabilities." OPDs, therefore, have a key role that can include: (i) using and developing data for evidence-based advocacy towards their priorities; and (ii) advocating for better disability data to inform policy, investment, and accountability.



The materials are designed to support workshops that will teach participants how to:

• Identify sources of disability data and the best approaches for its collection and analysis.
• Review and research available local data.
• Advocate for data collection and investment in better data.
• Use data to support evidence-based advocacy.

Each workshop is intended for between 4-20 persons with disabilities, ideally from the same country. The programme outlined in the materials contains eight individual sessions:

1. Introduction to the Disability Data Advocacy Workshop
2. 'Leave no one behind': The critical role of data disaggregation
3. Identifying the population with disabilities using the Washington Group Questions
4. Beyond disaggregation
5. Disability data sources, quality, and the role of OPDs
6. How to advocate for better data
7. OPDs role in advocacy using data
8. Drafting an action plan and closing

The full package of materials to support virtual workshops includes:

• Disability Data Advocacy Workshop for Organisations of Persons with Disabilities - Introduction [PDF, 8 pages] - This document offers an introduction to the full package of materials and explains how they should be used.
• Guidance for Host Organisations: Disability Data Advocacy Workshop for Organisations of Persons with Disabilities [PDF, 12 pages] - This document is a guide for host OPDs to convene and organise a disability data advocacy workshop. It offers specific information for the host OPD and relevant resources, such as facilitator terms of reference, invitations, and registration materials.
• Facilitator Package: Disability Data Advocacy Workshop for Organisations of Persons with Disabilities [PDF, 146 pages]  - This package supports facilitators in preparing for and delivering an online workshop. It includes briefing and pre-reading materials, information about how to use the session materials, tips for accessibility, and other guidance for preparing, facilitating, and following up the virtual workshop.
• Participants Package: Disability Data Advocacy Workshop for Organisations of Persons with Disabilities [PDF, 46 pages] - This package includes: session summaries (key messages, concepts, and additional resources for participants); session handouts for participants to use in activities (e.g., worksheets, reading materials) and additional details, explanations, or reference materials on specific topics; and individual reflection sheets.
• PowerPoint presentations (available for downloading at the link below) - These slides are designed to be presented during the workshop or can be sent to participants in advance.